O.R.S.A. President 2021

Many thanks to everyone for the kind words and well wishes.

As I embark on this new journey as the President of the @ontrettsyndromeassociation I am both humbled and honoured for the opportunity to advocate on your behalf.

Over the past 30 years, O.R.S.A. has made tremendous strides in the rare disease community and has helped many families overcome challenging obstacles.

O.R.S.A. is a beckon of light and hope for its members. A true testament of leadership and commitment from the past presidents (Gene, Greg, Terry and Kevin) and the many dedicated board members.

I am looking forward to continuing the legacy work to ensure that individuals with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community.

#orsastrong

With sincere love and gratitude, I would like to thanks my family, friends and community for the encouragement and support to pursue my passion and for caring for our daughter Ella and all those affect by Rett syndrome. We truly appreciate you 💜

3rd Annual fundraiser

Thank you from the Millson family and Revs 4 Rett team. Rett syndrome is a rare genetic neurological disorder that affects every aspect of an individual's quality of life. Symptoms include slowed growth, loss of movement and coordination, loss of communication, cognitive disabilities & much more... We are passionate about raising awareness and funds for Rett syndrome because our daughter is 1 in 10,000 that has this mutation. With the love & support of family, friends and race fans, we raised $10,231.00 for Rett syndrome research. This fundraising event was made possible by our sponsors: BALAZE, JASON-LIQUI MOLY @jasonbalaze CAMILLERI, JON-MOPAR @officialmopar DALEY, TREVOR-ONE SPEED INC @onespeedinc DARROCH, JAMES-CARLSBERG ELLIOTT, ADRIAN & MARTA-ACE MOTO TECH @acemototech FRASER, COLIN-CSBK @cdnsuperbike GONSALVES, PAT MACALUSO, CARLA AND ANTHONY @carlamacaluso MATHISON, SEAN-ROUGH AROUND THE EDGES WOODWORKING @crazy_m_pics MATHISON, CAROL @carolamathison MCFAYDEN, CAMERON MCFAYDEN, ANDREW @mcfadyena MENEGUZZO, TERESA- POSH HAIR STUDIO @teresameneguzzo MILLSON, LINDA AND JACK HERDER @linda.millson @mark_millson @beckeee3 MILLSON, MARK AND BECKY MILLSON, GLENN, FILOMENA, SARAH @sarahmillson_ MILLSON, MICHELLE AND PAUL MOTOVAN @cambraaten @motovan_southernontario MUNRO, SHARON @sharonkingmunro NOCE, SANDY AND SHEENA - PRO 6 CYCLE @pro6cycle Ontario Rett Syndrome Association @ontrettsyndromeassociation RODRIGUEZ, CHRISSY AND OSCAR @sparkyoc38 RODRIGUZ, MATTHEW-JUSTIN BARRY OPTICAL @rodreezus SERRANI, PINA-OPTIX EYEWARE @pinaserrani SHACKLETON, BILL-REMAX CANADA SHARPLESS, TONI-SUPER SONIC SCHOOL @supersonicschool SICILIANO, ELISA @elisa.cassandra.grace SICILIANO, SETTIMIA SICILIANO, CARMEN AND HELEN @helensiciliano SICILIANO, LINDA-CLASSIQUE HAIR SALON @linda.siciliano TEMPERATO, JOE-PRO 6 CYCLE @fityaite WALKER, FRANZ-LIQUI MOLY @fwalker131 WELSH, STEVE-POWER WORKERS UNION WOO, PETER-EXCELLENCE AUTO COLLISION @excellence_auto_collision WOODS, FRANK

#orsastrong #rettlandfoundation #clairesgreatadventure #revs4rett

2021 School Fundraiser

Thank you to the students, parents and staff for participating in this year's fundraiser. $600.00 was donated to the Ontario Rett Syndrome Association on behalf of Ella. These funds will go towards research efforts to find a cure. We are truly blessed to be a part of this loving school community. Many thanks!